6 months post transplant :)

Wednesday, November 10, 2010

Some new wounds to show for it...

            Well, just a brief update..Im home! My pain is pretty minimal too, finally. I'm on a liquid diet for a week, or until I see the surgeon again to give the o.k. to be able to eat solid again. I'm so happy to be home though! I really don't belong in the hospital anymore dang-it! I'm to well..lol! Here are some recent battle wounds.  Count the scars. ha ha.

Saturday, November 6, 2010

Back in the hole..lol

             Hey all! Greetings from the hospital! Yup, I'm back in here and they think they found the underlying issue as to why my lung function keeps dropping...or whats causing the rejection.  Stupid acid reflux and re-gurge. So, the plan is to have surgery on Monday, Nissen surgery, to tighten my esophagus so that nothing can come up into my new lungs.  It's kinda a big surgery, but it's being done laproscopically thank god! No big incisions..not that it would really matter though, whats a couple more compared to the one across my chest! ha ha! But, there are some crappy side effects..I guess after this procedure, it's going to be possible that I wont ever be able to vomit again. Which sounds good to some peeps, but it's not really that sweet. Kinda a scary thing, but weighing my options right now, it's better then losing these awesome breathers, so..I guess it'll have to be.  
        The good news is that my lung functions is still about 100%, and my sats are like 99, so there really isn't any serious damage done yet. Hopefully this will fix the problem completely and my lung function can come back after this.  I'm counting on it. There may be some permanent damage that is irreversible, but I'm hoping for them to come back up.

Wednesday, November 3, 2010

Bumps in the road...

      Well, I just got out of the hospital a couple of days ago and I must say..I don't miss that one bit! lol I can't believe I spent most of my time there pre-transplant. I was pretty miserable. I had to go in because I was having some major flu-like symptoms that just seemed to be getting worse and I was pretty short of breath. That scared me to have to be put on oxygen again..it brought back so many memories that I didn't want to drudge up again! It's very scary how fast I got sick. I was up in the morning and about an hour or two later I was throwing up and I couldn't breathe. My O2 sats had dropped to 85 on room air, and I couldn't even walk very far without losing my breathe completely. It was like I hadn't even had a transplant at all! I know that I had (or have) some sort of virus but they have no idea what it is. They were testing me for CMV, which is a blood virus, but it came back negative. So I'm hoping that they can find out some sort of answers for me. My breathing is much better but I am just so tired for some reason and I haven't been able to do much around the house that I need to get done.
        In the hospital my O2 sats kept dropping in the middle of the night into the 80's but as far as I know that has stopped. I just need to start getting some energy back. They also said that I have some A2 rejection which is still pretty mild, and they pumped me full of steroids for that. I guess I could be tired because of the rejection..but it doesn't seem likely to me. I think I've got something. I've got clinic tomorrow to see how my PFT's are doing..hopefully they are gonna go up so that I know the steroids worked. Here's to NO MORE REJECTION! Wish me luck <3